Author Archives: Janet

What Do You Do?

It seems like a perfectly reasonable question. It is completely innocent and is a socially acceptable way to make small talk. But for me, it causes an existential crisis each time it is uttered in my direction.

“So, what do you do?”

The answer that comes out of my mouth the most is ‘I’m a mom’. The other person then replies enthusiastically that that’s awesome and a really important job. They ask how old my kids are. When I say 23, 18, 16 and 10, I suddenly realize that I look like a woman of leisure who has two grown children and 40 hours of uninterrupted ‘me time’ each week while the younger two are in school. It probably conjures images of daytime TV, a really clean house, yoga classes and homemade dinners. Hell, I don’t know all that it conjures, but I need another title.

Sometimes the response to my answer is “You’re so lucky” and although I am grateful for what Dennis and I have built here, ‘Luck’ is a word that sticks going down. It played no part in the formation of our family structure and completely discounts tough decisions, necessity, certain limitations and, at times, deep and abiding frugality.

I choke on ‘Stay-at-Home Mom’, ‘Homeschool Mom’ and ‘Primary-Caretaker-Of-An-Adult-With-Developmental-Disabilities”. Those words all come with their own visual misreprentation of my messy, complicated, and busy days. If feel like I am all and none of of those things. The jagged intersection of the roles I play often confound me, so presenting them accurately to someone else in a social situation is nearly impossible.

Why can’t I just be a secretary or a barista? See how neatly that comes out?

I don’t devalue my current responsibilities, but I hear a silent conversation in my head.

‘I’m a mom’.
Yeah, me too. And I’m a secretary, barista, lawyer, teacher…

No, I don’t think everyone has this conversation. But I know some do.

I don’t want to fall into a habit of justifying what I am doing, or more apatly, what I am not doing. Which is work. Outside of my house. For money.

It is hard to leave it at that point. No one wants to hear about kids who are not easily served by a conventional school system. It is complicated to explain life without school. I do not wish to launch into a conversation about the flaws and failures of the world of adults with developmental disabilities which makes life, not just paid work, incredibly challenging.

One of the other harder facets of this issue is that I am not entirely happy or satisfied with my current circumstances. There is a part of me that would love to have a fulfilling career that provides a sense of accomplishment, not to mention how much we could use an additional paycheck. There are compelling and appealing parts of the work world that lie in stark contrast to how I live now. A change of scenary and a job title seem very attractive.

I have developed a skill over the years of rehearsing difficult conversations so that the next time they happen, I can develop satisfying responses. But this one has eluded me. I cannot find an honest, effective answer to what I do.

Nothing. Something. Everything.

One Step At A Time

I did two things today that I have not done in a long time. I donned my bright pink Brooks – they make me happy – and purposefully walked a couple of miles with Neil Gaiman in my airpods and I logged in here.

Turns out I miss both things. A lot.

I had developed a very consistent habit of daily walking (sometimes in excess of 30 miles a week) that improved my fitness, reduced my stress and anxiety, lowered my blood pressure and decreased my waistline (and allowed me to listen to nearly all of Neil Gaiman’s novels), until I was tragcially sidetracked by this. Although I still have bouts of post herpetic neuralgia, I’ve decided that the benefits definitely outweigh the pain.

Walking is almost always the only time that I am not being asked questions, answering a ringing phone, switching laundry, and just alone with either Neil (do you get that I REALLY like him?) or my own thoughts. The toll on my mental health has been great. This winter was much more difficult. I have always said that walking and hiking were more for my head than my ass.

My friend Elizabeth, who is a gifted healer and an endless source of encouragement often posts about restarting, rebooting and resetting your compass as many times as you need to.

What could you reboot today that would make a difference for tomorrow? I’m headed back out with Neil.

Image result for restart as many times as you need to quote

Sunday Scenes – The QuickChek Edition

We have a brand new QuickChek in town. Doesn’t sound exciting? They have offered free coffee since November 6 and I have availed myself of that each day since. They also have this neat little seating area that is sunny and warm and free of my household distractions. I rearranged my Pinterest boards, picked some future crochet projects, watched this Bullet Journal Series by Kara from Boho Berry and drank coffee. I will continue to work on this habit as it was delightful.

This. Make this.

The shredder broke. There was only one other option 🙂

I am working my through all the Neil Gaiman books. I feel so late to the party…I didn’t know he was this marvelous!

I ended the day in front of a fire that Dennis called ‘too hot’ and ‘uncalled for’ and asked if I was going to use up all of the wood. If I need to.

*’Sunday Scenes is an exercise in mindfulness and trying to connect to the little moments in time.*


When the words ‘Why don’t we all go to the park?’ were uttered, the moment was not lost on me. I told Sean to get his socks and shoes and I closed my Bullet Jounal, left a mess and got my things.

Because…what if this is the last time?

When the boys were younger, going to the park was a daily occurrence, practically a holy sacrement for many years. It was a necessity among all the other daily requirements.

But these days, this doesn’t happen. Ever. I am usually pleased when all 4 are just home, under my roof (so rare these days) at the same time.

The little cartoon devil and angel took up residence on my shoulders and whispered their own versions of the events in my ears.

Devil: This is it. One of the ‘lasts’. You might never see this again.
Angel: Sun. Laughter. Running children playing with each other. Soak it in because it’s one of life’s beautiful things.
Devil: Who knows if this will ever happen again.
Angel: Who knows if this will ever happen again.

The moment did not escape me. I grabbed it with both hands and reveled in it. I packed up this memory, carefully, and made sure I noted each and every detail.

Lately, I’ve been hit with the sentiment that goes something like, “Little kids, little problems, big kids….” So, maybe when the problems get too big, we can still solve them at the park.


Sunday Scenes

He drinks all of my coffee

Where I do my best work.

A lot of people = a lot of shoes

Sad, sad view

This book NEVER lets me down

I told the teenagers this was a BAD idea

Crocheting and praying for someone’s comfort – I will gift this beauty when she’s done

Keeping perspective.